New College Worcester (NCW), Whittington Road, Worcester, WR5 2JX
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New College Worcester Professionals & Parents DayDissemination of the European Education Project of Juvenile Batten Disease

Join staff from Batten Disease Family Association (BDFA) and New College Worcester to find out more about an Erasmus+ project to improve educational opportunities and non-medical interventions for a disadvantaged and very low frequency group in Europe – children and young people with Juvenile Neuronal Ceroid Lipofuscinosis (JNCL), also called CLN3 disease or Batten disease.

This is a life limiting, neurodegenerative disease and symptoms include blindness, epilepsy, speech problems, cognitive regression/dementia, motor coordination problems and emotional reactions including anxiety and depression.

The day includes an explanation of the condition and information about the project, along with opportunities to benefit from expert speakers and workshops on teaching young people who are affected by from the disease, of which visual impairment is one of the first symptoms.

Download a detailed agenda for the day here: Agenda

Who should attend:

  • Professionals working with or supporting young people with a visual impairment
  • Parents of young people affected by Batten disease
  • Those working with or supporting young people with Batten disease
  • Local Authority Professionals, SEN Officers and EHCP Officer

Date

Wednesday 22nd March 2017 10am – 3.30pm

Lunch and refreshments included

Click here to book your place